About a month ago, Maren had an "episode". She basically lost muscle control and couldn't stand up no matter how many times she tried. She would get about halfway there and then fall straight backwards. She was also crawling very erratically. It just so happened that she'd had 5 shots that day, and we also found out through bloodwork that she was severely anemic. At the time I thought that her system was just completely overwhelmed and that was the reason for her dizzy spell. Well, it happened again last night. I scooped her up and took her to the ER right away. I showed the Dr a video of the episode, and he thought it was likely some type of seizure, though a very atypical one. So we followed up with her regular pediatrician's office today, and after seeing 4 doctors, they all agreed that there is something neurological going on. So she will be going in tomorrow for a brain MRI as well as an EEG.
To say I am nervous is an understatement. Seeing how perplexed and concerned the doctors were really bothered me. And even after everything I went through with Avery, I always felt so fortunate that her issues could be fixed. The thought of Maren having a lifelong seizure disorder is enough to make me want to break down. I am trying not to think the worst, but it is so hard. I just want my baby to be Ok.
Showing posts with label medical. Show all posts
Showing posts with label medical. Show all posts
Wednesday, June 25
Wednesday, March 14
AW Alert!
Camille has made AMAZING progress recently! She has been in PT since January, and she is finally starting to build some strength. We bought her some "hip helper" shorts, and I swear, these things are magical! All of the sudden, she can lock her knees and bear weight on her legs! She is also finally showing some interest in moving. It's actually to the point where she is getting frustrated, which is such a good sign. before, she was content to lay back or just be held, but now she really wants to crawl around like her sister.
The PT told me that when she first saw Camille, she was terrified that she had Cerebral Palsy or something equally terrifying. But after working with her for 3 months, she no longer thinks there is any underlying issue causing her delays. Our theory is that she didn't move enough in the womb, and thus didn't have the same type of muscle development that Elizabeth had. And it is true--every ultrasound I had (and there were probably 30 of them) showed that Camille was crammed way down into my cervix, curled up in a little ball. Meanwhile, Dizzy was bouncing around/kicking Cam in the head/showing off for us. I am really hopeful that Cam will be all caught up in the next few months. Cross your fingers for us! I have been fighting with Early Steps and my insurance company to get her in to see an Occupational Therapist and a Developmental Pediatrician, but now I am hoping that she won't even need them.
As for Miss Dizzy, she is doing great! She has been cruising for months, and is now standing without holding onto anything. I bet she will be walking soon. I wouldn't be surprised if it was before 11 months. Her personality has also started to emerge more, and she is SO funny! She is also a bit of a bulldozer, and often crawls right over Camille to get to something (usually food).
Avery is still the ever helpful big sis. She is also going on her first plane ride today! We took her up in a helicopter for her 4th birthday, and had planned to do a plane ride on her 5th. But when we got to the airport, we were informed that the plane was "acting funny" and wouldn't be going up again that day. She was really bummed and has patiently waited for a year and a half. I am sad that I won't be there to see it, but D promised to take tons of pictures!
Time to get back to the real world... I will update on our move/house hunt later. And, of course, pictures of the plane ride!
The PT told me that when she first saw Camille, she was terrified that she had Cerebral Palsy or something equally terrifying. But after working with her for 3 months, she no longer thinks there is any underlying issue causing her delays. Our theory is that she didn't move enough in the womb, and thus didn't have the same type of muscle development that Elizabeth had. And it is true--every ultrasound I had (and there were probably 30 of them) showed that Camille was crammed way down into my cervix, curled up in a little ball. Meanwhile, Dizzy was bouncing around/kicking Cam in the head/showing off for us. I am really hopeful that Cam will be all caught up in the next few months. Cross your fingers for us! I have been fighting with Early Steps and my insurance company to get her in to see an Occupational Therapist and a Developmental Pediatrician, but now I am hoping that she won't even need them.
As for Miss Dizzy, she is doing great! She has been cruising for months, and is now standing without holding onto anything. I bet she will be walking soon. I wouldn't be surprised if it was before 11 months. Her personality has also started to emerge more, and she is SO funny! She is also a bit of a bulldozer, and often crawls right over Camille to get to something (usually food).
Avery is still the ever helpful big sis. She is also going on her first plane ride today! We took her up in a helicopter for her 4th birthday, and had planned to do a plane ride on her 5th. But when we got to the airport, we were informed that the plane was "acting funny" and wouldn't be going up again that day. She was really bummed and has patiently waited for a year and a half. I am sad that I won't be there to see it, but D promised to take tons of pictures!
Time to get back to the real world... I will update on our move/house hunt later. And, of course, pictures of the plane ride!
Wednesday, November 30
Already off to a bad start...
OK, so I am a bad blogger. This is why I never started a blog before!
Anyway, lots to update on... It has been a bit of a rough month. The twins caught RSV, and a double ear infection (for both) soon followed. Now they have moved onto bigger and better things--namely, a gastrointestinal virus. Fun times! Somewhere in the middle of all that, Avery spiked a random 104.5 fever. I am starting to think I live in a sick house.
At the babies' last well visit, it was determined that C needed to be evaluated by a cranio-facial surgeon. That has come and gone, and she is now the proud owner of a brand new pink helmet! She has been wearing it for about a week now, and seems to have adjusted just fine. She was also referred to early steps for a developmental evaluation. They found that she is behind in gross motor, but is actually ahead of schedule in everything else. She scored 97 (out of 100) in cognitive ability! Woohoo! So she will begin working with a physical therapist to address the motor delays, and hopefully she will be caught up in no time.
Thanksgiving was a success! MIL, SIL, BIL and nephew came down for about 4 days, and I think it went pretty well. I made a totally rockin' turkey that didn't even make anyone sick! I was so proud of myself!
D is (hopefully) in the home stretch of his PhD program and has several campus interviews coming up in December. We are excited to see where the next chapter of life will take us.
Anyway, lots to update on... It has been a bit of a rough month. The twins caught RSV, and a double ear infection (for both) soon followed. Now they have moved onto bigger and better things--namely, a gastrointestinal virus. Fun times! Somewhere in the middle of all that, Avery spiked a random 104.5 fever. I am starting to think I live in a sick house.
At the babies' last well visit, it was determined that C needed to be evaluated by a cranio-facial surgeon. That has come and gone, and she is now the proud owner of a brand new pink helmet! She has been wearing it for about a week now, and seems to have adjusted just fine. She was also referred to early steps for a developmental evaluation. They found that she is behind in gross motor, but is actually ahead of schedule in everything else. She scored 97 (out of 100) in cognitive ability! Woohoo! So she will begin working with a physical therapist to address the motor delays, and hopefully she will be caught up in no time.
Thanksgiving was a success! MIL, SIL, BIL and nephew came down for about 4 days, and I think it went pretty well. I made a totally rockin' turkey that didn't even make anyone sick! I was so proud of myself!
D is (hopefully) in the home stretch of his PhD program and has several campus interviews coming up in December. We are excited to see where the next chapter of life will take us.
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